Follow along and read about how Ryan spent his final days surrounded by those he loved the most... his FAMILY.

You can follow my blog at: Our life in Letters to Ryan

October 1, 2009

Day 8

YAY for 'liquid gold'
It was a good night in that sense.

BUT, when Ryan woke up, the mouth sores were MUCH worse then the previous day. It was so bad, he could feel sloughed off pieces of skin in his mouth. It hurt to drink and just swallowing his own saliva seemed to be a challenge. He then said,
"Wow, my mouth hurts so bad that I can't even talk normal... my voice is different."
He hit his PCA pump, rolled over and went right back to sleep.

The doctors finally woke him up at 8:30 when they came in for rounds this morning. They checked him out and noticed his mouth was worse, and saw some other areas that they needed to keep an eye on. With Ryan's WBC so low, still at .1, he poses a HUGE risk of infection and ANY open sore could cause major problems. To be on the safe side, they decided to do a CT scan of his abdomen, just to make sure he doesn't have any ulcer type sores in his intestines.
They also ordered another platelet transfusion to prevent any bleeding.
He was able to eat a little breakfast, shower and even walked 1 painful lap.
The rest of the day was spent sleeping and trying to produce that "liquid GOLD."
Ry's nutrition:

and Ensure Plus, for easy and tasty calories.


and here was dinner:


And here's some visible improvement:

The feet are doing good- down a few pounds.

Just those darn ankles... they seem to like the chubby look.


Q: If Ryan has all these symptoms, is he doing okay with the transplant?

A: YUP, It is 100% normal. This was expected by the doctors and nurses. They said that although it STINKS, it is completely normal for all this to happen when the counts are this low. He is RIGHT on track and his body is dealing with things very well so far.

Q: Why do you pick the music you do for the blog?

A: It is Ryan's choice, he tries to use songs that deal with the post OR that hold significance. For example: "Yellow" by Coldplay is our song. On our first date, when Ryan came to pick me up, they were playing on Saturday Night Live (yes, we were going out at 11:30 at night). Instead of rushing out the door, we just stood there in the doorway, listening to a band that seemed pretty good, singing a song we kind of liked. It grew on us, as we grew closer together.

"Look at the stars, look how they shine for you... and all the things that you do."

Keep fighting Ry



Elizabeth said...

Your blog is what I check first thing every morning. I'm amazed (and appreciate) your honesty and your example. We continue to pray for your whole family!

Emily said...

I am praying for you and your family. Keep it up Ryan! Love the song too!


Mindy Burns said...

Great post! Love the music- i thought you were going to say he chose the song "Yellow" b/c of the liquid gold color! or his favorite jello color lately! :) But now I get it! :) Thanks for the talk last night! I think we BOTH needed it! Love you two and miss hanging out with BOTH of you! Blogging is just not the same! :) Hope today is an even "gooder" one, as the bubbers would say!

The Collard Clan said...

Just when you think you are almost out of the woods you look threw the clearing and see more mountains....Someday, hopefully soon this adventure will be done and behind you then you can look back together and appreciate the struggles and how they brought you closer together. Hang in there. Still thinking and praying for you both!

Erin S said...

Hang in there Ryan! I hope those mouth sores go away so you can eat some REAL food soon. We love you and pray for you!

The Kindle Family said...

Awesome good eats Ryan! The juice doesn't look too bad! Keep on keepin'!

Seth and Julie said...

Yay for peeing without catheters.

I didn't know Yellow was your song. I love that, so unique. Seth is a big fan of Coldplay, although you may have noticed by the music on my blog.

I am glad the feet are looking better, Ryan must know a good foot doc? :)

Thanks for telling us this is all normal and that Ryan's body is dealing with the transplant well, that makes my day.

Kristen Ann said...

Keep up the fight - even if it's one moment to the next!! You and your family are always on my mind even though I don't know you. I know Heavenly Father knows you and loves you and can send peace and comfort through the Holy Ghost. I hope you are able to feel all the prayers in your behalf despite the very difficult challenges right now. Hang in there!

LISA said...

Why didn't he lose his eyebrows? It looks like he still has his hair on his toes!! Just wondering :-)
Aunt Lisa

Shan said...

Keep hanging in there Ryan.