Follow along and read about how Ryan spent his final days surrounded by those he loved the most... his FAMILY.

You can follow my blog at: Our life in Letters to Ryan

July 16, 2009

Ball and Chain...

The past 2 weeks Ryan has been HOSPITAL FREE...
Unfortunately, that does not mean DR/APPT free.
(Since Ryan started his chemo on Monday and his surgery was scheduled for Tues, his oncologist and the neurosurgeon thought it would be best to wait until a later date to place the Ommaya catheter. No surgery for now... YAY!)

For this round of chemo, Ryan was able to go to the Dr's clinic to receive his infusions.
So we spent a few hours every day HERE:


Ryan was LUCKY enough to come home with these two bad boys:
(IV pumps for his Chemo)
His new BFF's...they were inseparable:
So what do you do when you spend 4+ hours at the Dr's office just sitting there?
Text/play games, sleep... and READ READ READ

Here is a sneak peak at some of our reading material:
The recipes were DELISH- not a good thing to read when you are STARVING!
(Ryan is on a high protein/high cal diet. Any recipes to help him gain weight- SEND THEM OUR WAY!)

This reading was a LITTLE over my head:
... so I'm saving it for a later date!
(Right now we are waiting to see if one of Ryan's siblings are a match for the transplant)

Upon leaving each appt, Ryan was given LOTS of these:

So we have a little pharmacy going on at our house:

Here are some of the pills he takes each day before breakfast:

Then one day, they decided to give Ryan some cherry Kool-Aid via IV
ha ha... JUST KIDDING, its CHEMO!

And here is just one of the many side effects of chemo...

Getting some anti-nausea meds:

However, somewhere between the appts, cankles and everything else,
we see Ryan like this:


Then after 5 LONG days AND nights, Ryan was finally FREE from his

I think he was debating seeing how far he could chuck that thing...

Instead he just did this:
He was ONE happy guy!

Lets just hope the smiles continue during this next week as his counts drop and the side effects really KICK in!

~Hugs to all~



LISA said...

Our prayers, hugs, kisses, love squeezes are directed to all of you! I'm very proud how you guys are handling this. I hear you have a wonderful support group, thank you to them! kisses..Tita Lisa

The Kindle Family said...

Prayers are with you Ryan and Margie. You'll get through this! Yeah for the postponement of the Ommaya! Have a great week and thanks for the updates!

Kim Thacker said...

Good luck with the coming week! It's so amazing to see Ryan smiling through it all. What a guy! Love to you all!

Kinsey England said...

Good luck this week! Ryan is a trooper!

Seth and Julie said...

Holy medicine! Yikes! But I am going to give thanks for that medicine in my prayers tonight. Yay for the birilliant minds who have made it possible to beat cancer.

Thanks for all your updates and positivity. I LOVE seeing that smile. LOVE YOU GUYS!!!

Seth and Julie said...

I mean stupid does the girl looks who spells brilliant wrong...HA,HA!!!

Ryanne said...

We love you guys! Way to go Ryan, keeping your smile on. We're praying for you!

Mindy Burns said...

Those pictures are great! We're so glad he's been able to be home the past little while and he seems in really good spirits lately!!! We love you guys!

Lisa and Mike said...

Margie, you do an awesome job with the pictures and the updates. Glad to see Ryan smiling and chuggin along! It was good to see Ryan's brother while he was at our place! Glad we can help and let us know if you guys ever need anything, anytime!

Heather said...

So wonderful to keep up on his progress and all of your hard work. Great that you have received all of the leave time and still have more to come!!! It's no surprise! You are a wonderful family. We'll keep praying for you all!

webster said...

Margie, sorry about today. I tried back but the phones must have been having problems still. Thanks for the update with the pictures. We are praying for your family daily. Let me know what I can do to help AND don't forget that I can come out there if you need me!

Aubri said...

Glad to see he's doing well. If his siblings aren't a match I'm more than willing to see if I can donate...Good Luck with everything Ryan!

Jill said...

It's great to see Ryan's smile. It sure gives perspective to realize we can smile through anything. You guys are in our prayers. I just know you are loved by so many. Hang in there and keep smiling.

Student Doctor Jon said...

Your in our prayers Ryan (and family). It is nice to see your so positive and upbeat. Good luck this next week.

Mandi Moon said...

It's so good to see Ryan smiling! I am really glad that you are doing this blog! I love reading it and seeing the pictures and being able to see how you guys are doing! I get goosebumps everytime I read it! Thanks for keeping us in your loop! =) We'll keep praying for you! XOXO

Stacie said...

We have done that reading, pretty intense stuff huh? I didn't realize he would do a transplant. If you have any questions ( I know it won't be exactly the same and Chloe's) you let me know. We continue to pray for you, and to give you some you can do this news, chloe, after two years after transplant, finally gets to go to school!

LeShel said...

Hooray for Team Ryan Hess! Keep those chins up but remember sometimes tears need to come too.
Your in our prayers and thoughts. May God bless you and your dear children and wonderful wife!!

Heather n Ryan said...

Quinoa(sp)...its a grain that is high protein. You can cook it and make it into salads and stuff. Just FYI from a friend who is pretty knowledgable about health...She says red meat is the worst thing he can eat during cancer. Read up on macrobiotic diets or the alkaline cure(diet)...a big long book. Also get on astragulas (herbal supplament) ASAP! If you want I can have her send you some informative stuff. Just e-mail and let us know if you want. Shes pretty much helped cure someone form cancer, herbally.

Gramalis said...

The Hartungs pray daily for your family and the doctors.

Beat it. Just beat it!


TheTexasSpud said...

I am cheering for you man!!You are and your very cute family are in my prayers. Be strong man!!

Your friend
Spencer Smith

Tanya said...

It's great to see you in such good spirits. Keep it up! I love the cankles, I remember Casey had the same thing. They feel so soft!
Brian's Mom swears that the herbal supplements that she gave Jill (Brian's sister) during her cancer is "really" what healed her, and helped her into remission. I know Brian's Dad is trying the supplements now as well. I can get you more information if you need it. I'm sure you've looked into this already. Keep up the fight! You have many praying for you.

Erin S said...

It really does look like Kool-Aid! Ryan, you look pretty good with a shaved head! Love you guys and are praying for you!

Katelin said...

I'm so glad he at least got to sleep at home this time, although it looks like there was still plenty of time spent at the doctor's. Keep looking at the bright side of things, and know that we are praying for you and thinking of you so much! Thanks for the updates!!

Miranda said...

I love the humor. Margie, you're taking some great pictures too! Very "fun" to read and I'm so glad to see so many smiles from Ryan. I am very impressed by that!! What a trooper. Keep it up!

The Dunn's said...

You guys are an inspiration to us all. Hang in there, our prays are with you.

Theresa said...

Thinking and praying for you Hess family. Margie, you clearly have a wonderful sense of humor. Your comments are making me crack up. God bless, Tis